Tag Archives: IEP

Please

We all have dreams for our children. Autism doesn’t take away our dreams – it only changes them according to our child’s abilities. And so, we still dream.

My dreams for Neil have certainly changed over the years, but I still have them. And so does he. Some of those dreams have come to include the possibility of a post-secondary education, which seems out of reach given his academic challenges and the lack of local resources to address those challenges. So, we found a resource – a special school – that can teach him the skills he needs to be able to work independently, and I foolishly believed that all I needed to do was fill out a bunch of paperwork and enroll him.

I had no idea that the administration at his current school might not agree that this is something that he needs. I had no idea that they would be reluctant to change his IEP to reflect that his academic needs would be better met in a non-public school setting. I had no idea that the minor hoops I envisioned jumping through would turn into major hurdles.

The special school we would like Nigel to attend costs more per year than my entire college education did. Even when I sell my house I will not be able to pay the tuition out of pocket. However, we can receive funding if the change is made to his IEP, if it designates that his needs would be better met in a non-public school. I approached the special education coordinator at Neil’s current school, and she discussed it with the district sped coordinator. They declined our request, stating that Neil has made progress and “is capable with supports to maintain grades.” We have an IEP meeting scheduled next week to discuss this further. Neil’s father, who lives 700 miles away, will attend via conference call.

Yes, Neil has grown. He has come so far. But the fact is that the progress he has made has been behavioral and social. And while this is indeed wonderful, his academic needs are not being addressed. The grades that he “maintains” are heavily modified. The teachers do not even assign him homework! He can barely complete the class assignments, even with constant assistance. I know that they like him and care about him, but it appears that they are just pushing him through. If he cannot work independently, he will not be able to attend college. It’s wonderful that he receives so much academic support; the special education coordinator helps him every day to do his work. But he needs to learn the necessary executive function skills to be able to do it on his own, and I don’t expect him to learn that in a public school setting.

I know that some of the professionals who have worked with my son have read this blog before and might be reading this post. I really hope that they do. Because I want to say this to them:  Please. Please think of Neil’s academic needs. Please think of the dreams that he has. Please give him the opportunity to utilize the best academic resource that is available. He needs more specialized instruction than what you are able to provide. I do not fault you for this, especially since he is only the fourth ASD student to attend your school. I truly appreciate all that you have done for my son. Please just do this one last thing for him. Please.

Changes

That David Bowie song is playing in my head – “Ch-ch-ch-changes . . . Turn and face the strange changes . . .”

Nigel and I have some big changes ahead of us. It’s been a year since I began homeschooling him, and just when I started to feel like I was doing okay with it, Nigel announced that he wants to go back to regular school. I’m not too surprised, actually. He is a social, extroverted person, autism notwithstanding, and even though he’s been involved in Scouts and has other social outlets, he’s reaching his limit of being home with Mom. And it’s showing in his lack of compliance with doing his schoolwork. It’s been increasingly difficult to get him to focus, to gauge if he’s learning anything, and if he is, whether it’s going to stay with him. His thoughts are always elsewhere.

I never expected to homeschool him for very long. Hell, I never expected to homeschool him at all until it became necessary! I had never even entertained the thought. I never thought I was the homeschooling “type,” whatever I thought that meant. I guess I thought it meant people who really wanted to homeschool their children for religious reasons – or any reason, for that matter. But once I realized that he needed it, a) because things were so bad at school that he asked me to, and b) because bussing him to a contained classroom in a different city was not acceptable to me, then I wanted to do it. Then I began to wrap my mind around it and come up with ways to make it happen. It was probably one of the biggest challenges I’ve faced as a single parent – making drastic work changes, schedule changes, and financial changes. I put so much mental energy into just getting used to the idea of homeschooling. Then I had to research what I was supposed to teach him, how to do it, and plan. It required a lot of focus to convince myself that I could do it.

It’s not over yet, of course, not for a while. The first step will be to see his doctor again, since we have decided to try some new medication to help with his behavior and need to get started with that. Then we need to attend his IEP (Nigel has requested, for the first time, to attend his IEP meeting, which is huge) to discuss what his options are. Most likely he will attend two classes in the morning and then come home, so he will be half-homeschooled. We’ll do this for spring term, and if all goes well, in the fall when he starts high school (gulp), he may be able to attend full-time with some support.

So, we’re making adjustments. It reminds me of when he was younger and he attended three different elementary schools before we found the right fit – we constantly made adjustments. We are no strangers to change. Part of me is feeling defeated – I had to work myself up to doing this in the first place (homeschooling), and now it is winding down. But it’s not like I’m throwing in the towel. We’re just making adjustments. Trying to find the right fit again. I have to believe that we will.