Tag Archives: normal

The Lowdown, Vol. 3

Since the boys are gone this week for Spring Break (visiting their dad in L.A.) and I am feeling the usual disjointedness with them away, I figured it was time for another edition of Personal Posts. Because I’m sure you were all waiting for it with baited breath, right? No? Okay.

So, we’ve lived in our current home for almost seven years, and the carpet is sporting seven years’ worth of stains and hard living (with two boys and various pets trampling it), so I’m having it replaced. I had hoped to have it done while the boys were away, but it turns out that the installers are on Spring Break as well. So it’s going to be done next week, and I’ve spent all of this week moving everything out of the rooms and closets – seven years’ worth of books, DVDs, papers, Lego, clothing, Nerf guns, action figures, cars, stuffed animals, and whatever else I stuffed in our back room, to be sorted later. Then I touched up the walls in the rooms that will get new carpet, and I used up a half gallon of paint just “touching up” the boys’ rooms!  Not to mention half a container of Spackle. God help me, boys are hard on a house!

But those boys are also the loves of my life, and I enjoyed talking to them on the phone yesterday. They are having a blast, spending time with their dad and visiting with L.A. friends, and they even got to go to Universal Studios! Neil was ecstatic over the Jurassic Park ride, of course. Adam, with his vestibular issues, preferred the Mummy ride. They had flown down again, their second solo flight, and everything went well. When it was time to board, I waited with them in line for a few minutes, and as they neared the ticket-taking agent, Adam said gently, “Mom, I think we’ll be fine now. You don’t need to wait with us.” And Neil chimed in, “Yeah.” So I tried not to cry and hugged them, saying, “Be safe and have a great time. I love you!” And as I stepped out of the line, an older lady a few feet behind us said good-naturedly, “You boys be good now!” And right then, at that moment in the airport, I felt like a regular parent. A regular parent saying goodbye to her teenage sons as they boarded a plane, trusting that everything would be fine.

I smiled and waved, watching them pull their carry-ons. And for the first time, I felt normal. I know – we shouldn’t use that word. I even discourage Neil from using it when he describes non-autistic people, because I want him to think of himself as normal too. But the nonchalant way that woman said what she said, and the way I felt just knowing that I didn’t have to worry, I can’t think of another word for it. I guess the fact that I was aware of feeling that way negates the normalcy of it. But I don’t care. I felt normal, or what I assumed felt normal, and it was great, that little glimpse. And hard-won. I sat at the gate for a while longer, and then I watched the plane take off, taking my beautiful, almost-grown boys with it. And although I feel disjointed with them away, somehow it feels a little more manageable this time. A little more normal.

A Normal Man

Image credit: simon gray 

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Sometimes, as a mom blogger, I get the feeling that my kids somehow tap into the wavelength of a post I’ve written – before I even post it. And then they come to me and totally disprove whatever I’ve written about them.

For instance, the night that I wrote “Polite Conversation,” about Neil using lengthy delayed echolalia at the dinner table one evening, he came into my office – minutes before I posted it – and began what was undoubtedly the most incredible conversation I’ve ever had with him.  I honestly didn’t realize that he was capable of a serious back-and-forth discussion regarding intangible ideas for over half an hour. And he revealed so much more about himself during the course of it.

He started off by running into my office, eyes wide. “Mom! Have you heard of something called ‘home births’? Because I think I want to have my children that way and I wanted to see what you thought of it.”

Definitely didn’t see that coming. “Yes, I’ve heard of them. But I think that you should talk to your wife about it first. And I don’t think you need to worry about that for a long time.”

“You mean when I’m 18?”

(!) “No, I think that’s a bit early. You need to have a good job and a home for your family before you start thinking about having children.”

“20?”

“I think that’s a bit early also.”

“Well, I need to be prepared.” That’s six years of Scouting talking.

Then he sat down on a chair that’s across from my desk, and the topic changed to dating. He mentioned, quite wisely, that he needed to have a girlfriend before he could have a wife, and that there didn’t seem to be any girls at the high school who really understood him. He said that some of them were nice to him, but he was worried that they might not be sincere. “What if they ask me out on a date, but they’re just trying to trick me? How will I know the difference?”

My heart ached to hear him say it. He already knows that he is vulnerable to this. I told him that one thing that will help is to be friends with a girl before dating. And then, I pulled out my new copy of The Unwritten Rules of Social Relationships: Decoding Social Mysteries Through the Unique Perspectives of Autism by Temple Grandin and Sean Barron. It had just arrived from Amazon mere days before, and I had been waiting for the perfect opportunity to tell Neil about it. I couldn’t have planned this better if I tried.

He seemed interested. I asked him if he wanted to read it himself or if he wanted us to read it together, and he opted to read it on his own. I was thrilled by his positive response! Somehow I had tapped into what he needed – before he even asked. But of course, we autism parents do that all the time, especially when our kids can’t ask.

We talked some more. We conversed. He made eye contact, he posed ideas and waited for my response, and then he responded to my ideas. Sometimes he added even more to his response. His voice inflection was perfectly appropriate, he tried new words and asked me if he used them correctly, he was fully engaged. My heart was bursting with joy, because for many years I didn’t know if such conversations could ever take place.

Then at one point he leaned forward in his chair and said, “I think I’m different from other autistics because I want to be a normal man and have a wife and family.”

I tried not to let my face show too much emotion, but lately my son has been causing me to tear up a lot. “Oh, honey. Yes, your autism makes you different and makes some things more difficult to achieve, but don’t ever think that you can’t be a normal man if you don’t have a wife and family. Whatever you do with your life, you will always be a normal man. In fact, better than normal.” I got up, walked over to him, and gave him a hug, which he stiffly accepted (the usual for him).

He left then, book in hand, and I couldn’t help but cry. I always think about my son’s future and how different things will be for him. But what I hadn’t thought about is the now unmistakable fact that he is also thinking about his future, his adulthood. And then I remembered something that I had forgotten to tell him. Something I wanted to make sure he knew. I dried my eyes and walked to his room.

“Neil, I just wanted to tell you that when you’re an adult, I’ll still be here to help you, to talk with you. I’ll always be there for you.”

He paused a moment, taking that in. Then he said, “Good, because I don’t know how to get grants for college.”

Oh, honey. I got you covered.