Teen Autism

I’ve been seeing this meme going around the blogosphere for a bit, and every time I see it I think about what I might list as my quirks. And now I’ve been tagged with it (by Bonnie at Autism Family Adventures), so I’ve got to censor narrow down my quirks to six. Herewith, I admit to the following as unsheepishly as possible:

1. I am obsessed with peeling sunburns. You take your life in your hands if you walk past me and I happen to notice skin flaking off your shoulders. My sons run from me. And I don’t just peel skin off of other people; I enjoy peeling my own sunburns even more. But since I do wear sunscreen daily, my opportunities for self-peeling are limited.
2. I love the different textures of my hair. I love when I run my fingers through it and discover one that’s coarse and wiry hidden among the rest of the straight hair. I love how it feels on my fingers.
3. Everyone has their own scent (and not the sprayed-on kind). When I am in close proximity to people I know well, I discreetly inhale their scent. With my kids I am more direct; I walk right up behind them and smell the tops of their heads. (If this is starting to sound like I’m a little ND, I would wholeheartedly agree with that assessment.)
4. I am freakishly good at word searches. I can find them diagonally/backwards and any other way. If a word is in a word search, I will find it, and usually quickly. When Aidan brings one home from school, I have to restrain myself not to do it for him.
5. I only sleep on my left side, although this is more of a forced quirk, since it’s because of a snowboarding injury to my right shoulder a couple of years ago. No more jumps for me!
6. I have not worn a watch in twenty years. Instead, every day for twenty years I have worn a silver bracelet that my grandmother gave to me. If that bracelet could talk, this list of quirks would have no end.

And now it’s time to pass the fun. The rules of this meme are as follows:

1. Link the person who tagged you.
2. Mention the rules on your blog.
3. Tell about 6 unspectacular quirks you possess.
4. Tag 6 following bloggers by linking them.
5. Leave a comment on each of the tagged blogger’s blogs letting them know they’ve been tagged.

But here’s the thing: when you play tag, you only have to tag one person. So I am going to bend the rules and only tag one other blogger whose quirks I’m dying to know . . . Osh at The House That Osh Built! Thanks for indulging me (and my quirks)!

Today I couldn’t wait to get home from work and hug my kids. I do that every day, of course, but today I was reminded of the unfortunate truth that all humanity shares: we never know how much time we have.

The son-in-law of one of my friends had a massive stroke and died today. He was thirty-three years old. Thirty-three! He leaves behind his wife (my friend’s daughter), their five-year-old daughter, three-year-old son, and unborn third child. I can’t even imagine their grief. All I can do is remember, as I do when I hear about a sudden death or drive by the scene of a horrible accident, that our time with those we love could end at any moment. Morbid, yes, but also motivating. It’s the kind of thing that makes you want to hold your kids (if they’ll let you), call up your parents and siblings, and tell everyone who matters in your life how much you appreciate them.

I think of all the bad days I’ve had in the past year alone, the frustrated helplessness of dealing with meltdowns, school districts, doctor appointments, insurance, finances, and everything else about life that’s stressful, everything that makes me loathe my day. But then I remember: I’m here. I’m alive, I’m usually well, and so are those to whom I’m closest. I can come home from work and hug my kids. I don’t ever want to take that for granted.

The time that we have is the only time that we have. It may be filled with some unpleasant or challenging aspects, but it’s also filled with the company of those we love. And that makes every day worthwhile.

We learn much from our formative elementary school years, probably more than we realize. I have written previously about how it was in elementary school that I learned about disabilities, and the negative way that some children react to them. But there’s something else that elementary school taught me about living with disabilities, something that I only recently comprehended.

At recess and during P.E. we often played kickball, among other things. It was baseball without the bats and gloves. Not having much athletic ability beyond being a reasonably fast runner, I was among the last few chosen for teams when everyone was required to play. I couldn’t kick very far. It really didn’t bother me, since I had no desire to play. But what I remember most was when one of the heralded elementary school jocks - the future varsity team members - came up to “bat,” every one of the fielders started to back up, giving him a wide berth. These eight-year-old, would-be high school stars could kick far. The fielders called out to each other, “Go deep,” in a respectful, cautionary tone. That would be the only way they could hope to catch his fly ball. I learned early on that in some circumstances, to handle the difficulties that life throws your way, you have to pull out all the stops.

Life with autism is like that.  If we hope to deal with the lifelong challenges of autism, we have to “go deep.” We have to tap our reserves, focus, and be prepared. We learn to anticipate, listen to our intuition, and be aware. But we also have to go deep within ourselves to summon our strength and find our courage. I may not have been able to kick the ball very far, but I learned how to catch it when it was coming my way. Sometimes, you have to back up to catch a fly.

Last week a friend of mine found a lost dog, a little Yorkie, running around in a street in our town, and she picked him up so he wouldn’t get hit. There was no owner information on his tag, so she called the animal shelter, but no one had reported him yet.  She then proceeded to go door-to-door in that neighborhood trying to find the owner and finally did. The Yorkie, Sam, belonged to two older ladies, sisters living together. They were ecstatic to have him back and invited my friend in for tea.

The younger-looking sister was tall and thin and began telling my friend all sorts of wonderful stories about Sam, going off on tangents about their family members, places they’d traveled, and other dogs they’d owned. The older-looking sister, who was shorter and appeared to have osteoporosis, would periodically roll her eyes and say with urgency, “Focus, Martha, focus!”

I laughed as my friend told the story, envisioning the exchange. It reminded me of all the times, especially in the past few months of homeschooling, when I had to redirect Nigel by telling him to focus on what we were doing. I often have to remind myself to focus with all the different projects and distractions I have going on. Focusing is how we achieve our goals in the face of daily life. It’s also how to keep things short and sweet when a stranger returns a lost pet. “Focus, Martha, focus!” I had to write that on a Post-it note and stick it on my monitor. It’s the best advice I’ve heard all week.

“Doubt everything. Find your own light.” –Buddha

This is pretty much the flip-side of yesterday’s post. I just found it today and I thought, Yes! Buddha’s all right! This quote is my new credo.

After all, isn’t that what we parents of autistic children do? Every day? We find our own light. We forge our own path.  We don’t take anything for granted.

And that “doubt everything” part. That’s just the ancient version of “question authority.” Good to know that Buddha sanctioned it a couple of millennia ago. Maybe there is something to this Enlightenment idea.

“To live here and now you must train yourself: In the seen there will be just the seen, in the heard just the heard, in the sensed just the sensed, in the thought just the thought. That is the end of sorrow.” –Buddha

As an adolescent I became attracted to Buddhism, but it was nothing that I pursued. Enlightenment sounded peaceful, desirable, but I had other things to do. I thought that someday, if I ever wanted to be affiliated with an organized religion again, it would be Buddhism.

Recently I came across the above quote and have pondered it for several days. “The end of sorrow”? The only way to not experience sorrow is to not be attached to anyone. I can isolate what I see, hear, sense, and think. But no matter how enlightened I am, I will certainly feel sorrow when a loved one dies. I will certainly feel sorrow when a loved one is in pain. I will certainly feel sorrow when my children are 700 miles away for seven weeks.

And so I thought, Buddha must not have had children if he devised this method to not experience sorrow. And when I did some research, I discovered that he did indeed have a wife and a son, whom he left at birth when he went off to do his Enlightenment search. And he was gone for seven years. As a sole parent ten months out of the year, this made me not think too highly of Buddha. All my life I had erroneously thought that Buddha had been some solitary prophet, wandering around learning and teaching. Granted, his wife and son lived in a palace, but the fact remains that he abandoned them for his search for Enlightenment. Okay, it was for the greater good, but I still don’t like it. Seven years is a long time.

But enough of the Buddha-bashing. I’m still attracted to the peaceful, meditative ways of Buddhism. And, if I think about it, I can even rationalize and accept the fact that Buddha left his family to gain some clarity. I feel that way now, with my children away for seven weeks. I climbed a mountain. I’m writing more, talking less. Meditating, reading. But I miss my boys. Enlightened or not, for me the “end of sorrow” will be when they come home.