Comments on: My Undiagnosed PTSD http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/ Beyond ABA, after OT . . . what now? Mon, 06 Feb 2012 08:39:33 +0000 hourly 1 http://wordpress.org/?v=3.1 By: Tanya Savko » Blog Archive » Things That Go Thud in the Night http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-122472 Tanya Savko » Blog Archive » Things That Go Thud in the Night Wed, 29 Jun 2011 03:21:40 +0000 http://teenautism.com/?p=357#comment-122472 [...] that he is having a seizure. Of course, I didn’t know the first time. But from that day forward, a sort of PTSD kicked in, and now, whenever I hear thuds or thumps in my house at night, my body reacts. I leap out of bed, [...] [...] that he is having a seizure. Of course, I didn’t know the first time. But from that day forward, a sort of PTSD kicked in, and now, whenever I hear thuds or thumps in my house at night, my body reacts. I leap out of bed, [...]

]]> By: Teen Autism » Blog Archive » On Our Mark http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-33524 Teen Autism » Blog Archive » On Our Mark Thu, 09 Sep 2010 04:11:47 +0000 http://teenautism.com/?p=357#comment-33524 [...] us with kids in school. For me, it’s not really about that. It’s that year after year my PTSD kicks in every time the phone rings. And I’m referring, of course, to the years and years of [...] [...] us with kids in school. For me, it’s not really about that. It’s that year after year my PTSD kicks in every time the phone rings. And I’m referring, of course, to the years and years of [...]

]]> By: Teen Autism » Blog Archive » The More Things Change http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-16337 Teen Autism » Blog Archive » The More Things Change Mon, 23 Nov 2009 06:35:51 +0000 http://teenautism.com/?p=357#comment-16337 [...] Now, he can eat a full meal in a restaurant without any discomfort or distress. Unfortunately, my ASD-parent PTSD is always affecting me, and I cringe at every single sound. The music, the babies, the clanking. [...] [...] Now, he can eat a full meal in a restaurant without any discomfort or distress. Unfortunately, my ASD-parent PTSD is always affecting me, and I cringe at every single sound. The music, the babies, the clanking. [...]

]]> By: Joell http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-15200 Joell Fri, 23 Oct 2009 22:58:49 +0000 http://teenautism.com/?p=357#comment-15200 Stumbled across your blog when I was googling noise sensitivity and autism. I have a 14 yr old boy dx with Asperger's when he was 5 who is extremely noise sensitive, mostly to the sudden laughter of others. It leads on occasion to major meltdowns...a few of late. Just when you think things are getting better, WHAM! You described me to a "T" when you were talking about being hyper-vigiliant and second guessing every situation. And breaking out in to sweats?? Oh yeah, that's me! So nice to be reminded that we are not the only ones. So glad I stumbled here. I'll be back. Stumbled across your blog when I was googling noise sensitivity and autism. I have a 14 yr old boy dx with Asperger’s when he was 5 who is extremely noise sensitive, mostly to the sudden laughter of others. It leads on occasion to major meltdowns…a few of late. Just when you think things are getting better, WHAM!

You described me to a “T” when you were talking about being hyper-vigiliant and second guessing every situation. And breaking out in to sweats?? Oh yeah, that’s me! So nice to be reminded that we are not the only ones.

So glad I stumbled here. I’ll be back.

]]> By: kristi http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-15161 kristi Thu, 22 Oct 2009 22:56:51 +0000 http://teenautism.com/?p=357#comment-15161 Wow, this makes sense. I cannot stand tapping or clicking (pens, smacking gum, etc..). Part of it I blame on my older brother who always had to be making some kind of noise! Wow, this makes sense. I cannot stand tapping or clicking (pens, smacking gum, etc..). Part of it I blame on my older brother who always had to be making some kind of noise!

]]> By: Alicia http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-15068 Alicia Mon, 19 Oct 2009 21:50:21 +0000 http://teenautism.com/?p=357#comment-15068 In totally with ya on this. There's a term in the PTSD lingo called "Vicarious Traumatization" - i think its fitting for parents of kids who went through things like nigel did as a baby/child... In totally with ya on this. There’s a term in the PTSD lingo called “Vicarious Traumatization” – i think its fitting for parents of kids who went through things like nigel did as a baby/child…

]]> By: Joanie @ The Bright Side http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-14880 Joanie @ The Bright Side Thu, 15 Oct 2009 02:01:12 +0000 http://teenautism.com/?p=357#comment-14880 The phone ringing during school hours, that gets me every time. We've had too many calls from the school in the last year. Oh, and babies crying in restaurants that use to be an instant trigger for my son. I still freeze when that happens. The phone ringing during school hours, that gets me every time. We’ve had too many calls from the school in the last year. Oh, and babies crying in restaurants that use to be an instant trigger for my son. I still freeze when that happens.

]]> By: goodfountain http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-14853 goodfountain Wed, 14 Oct 2009 12:47:15 +0000 http://teenautism.com/?p=357#comment-14853 I can't say that I've ever been on high alert as you described due to sensory stuff as Charlotte just hasn't been on the super-sensitive side, but more on the under-responsive side. I think what I may have a hard time with is the whole independence thing you write about with Nigel. Independence ... no!! Hopefully you will indeed pass through this and eventually NOT be on the high alert all the time. I can’t say that I’ve ever been on high alert as you described due to sensory stuff as Charlotte just hasn’t been on the super-sensitive side, but more on the under-responsive side.

I think what I may have a hard time with is the whole independence thing you write about with Nigel. Independence … no!!

Hopefully you will indeed pass through this and eventually NOT be on the high alert all the time.

]]> By: Kim http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-14840 Kim Wed, 14 Oct 2009 02:07:38 +0000 http://teenautism.com/?p=357#comment-14840 I think I will always have some sort of reaction to public restrooms after having to chase the Roc as he flees from the noise of the scary flushing toilets! I'm forever looking for an empty bathroom for him. Just thinking about it makes my heart beat a little faster. I think I will always have some sort of reaction to public restrooms after having to chase the Roc as he flees from the noise of the scary flushing toilets! I’m forever looking for an empty bathroom for him. Just thinking about it makes my heart beat a little faster.

]]> By: rhemashope http://teenautism.com/2009/10/11/my-undiagnosed-ptsd/comment-page-1/#comment-14835 rhemashope Wed, 14 Oct 2009 00:33:21 +0000 http://teenautism.com/?p=357#comment-14835 I think Kim Stagliano referred to this as the Autismometer. I cannot imagine a day when I will NOT be on high alert. As for my daughter learning to manage some of her sensory issues, your stories give me hope. I think Kim Stagliano referred to this as the Autismometer. I cannot imagine a day when I will NOT be on high alert. As for my daughter learning to manage some of her sensory issues, your stories give me hope.

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