Comments on: Autism Safety & Risk Management, Part 2

By: dynamite girl

dynamite girl — Wed, 24 Jun 2009 04:03:41 +0000

So much of this info I want to share with others! Thank you. I got the shirt yesterday. I wanted to let you know it arrived (YAH). I am so excited about this project, it was really fun (and eye opening) to see my children’s responses as I told them the story. They do not know Dylan has Asperger’s. (I am not sure Dylan knows, the doctors talk in front of him like he isn’t there but, when I bring it up he changes the subject, I figure he needs to come to terms with it before I tell his siblings) He was only officially diagnosed in Jan. But, we talk about autism constantly at our house. We are involved with many people who have it, and my kids are very protective of them. My ten year old wanted to hunt down the teacher (I am not sure what he thought he was going to do). I got them calmed down and they all agreed the shirts would be a good way to spread awareness. Dylan will not be home till Saturday so I will post pictures then. He is at a scout camp…scary.

By: Autism Safety Measures « Autism In a Word

Autism Safety Measures « Autism In a Word — Wed, 24 Jun 2009 03:36:34 +0000

[...] at Teen Autism has written some very helpful and informative posts on Autism Safety and Risk Management. Possibly related posts: (automatically generated)The WishingThat’s My TwinIn Her [...]

By: Tanya Savko

Tanya Savko — Wed, 24 Jun 2009 02:00:48 +0000

Paulene - Thank you for mentioning the concern parents might have about disclosure. In the next post, there will be a link to a booklet about predators (coming into your home) that Dennis Debbaubt recommends. It probably wouldn’t apply in your area, but it might be helpful for parents here who have those concerns.

Nicki - Excellent point! I’ll actually be discussing the information card in my next post!

By: Cathy

Cathy — Tue, 23 Jun 2009 22:28:39 +0000

this is so helpful–thanks! Ethan is so impulsive, i still have to watch him when we’re getting in and out of the car so he doesn’t bolt on me.

By: rhemashope

rhemashope — Tue, 23 Jun 2009 18:56:51 +0000

Very good information and very, very timely. I especially like the idea of having information red-flagged before an emergency. We recently got ID bracelets in for both my girls.

By: Alicia

Alicia — Tue, 23 Jun 2009 16:23:17 +0000

this is GREAT! and very timely for me as just yesterday I almost lost my 14 year old from my younger daughter’s dance studio. She just walked out the door, unnoticed by me as I was busy collecting up my my 4, 3, and 18 month old. My eldest was half way across the parking lot… ugh!

By: Nicki

Nicki — Tue, 23 Jun 2009 15:55:24 +0000

That is some really good information! I never thought of calling the 911 center to “red flag” information about your family… that is a really good idea!
Also as a way of giving out information in an emergency for an individual with ASD, even if they are verbal… I used to have a folder with a piece of paper that had my picture and some information about my disabilities. It basically said that I would probably have trouble communicating and might be acting strangely, but was not on drugs and did not get physically violent. I used it quite a few times to hand to police officers and medical personell… back then people were ALWAYS thinking I was a drug addict or that I was severely mentally ill and off my meds or something..Adults or teenagers with ASD can make their own information sheets, the way I did, so they can decide what information they want to quickly share about themselves.

By: Holly

Holly — Mon, 22 Jun 2009 17:40:36 +0000

This is very helpful information, especially for parents new to autism…

For the last point, I had the school write me a note to keep in the car that proved that she had autism (just in case some nasty officer thought i was just a bad mommy!! trust me it happened to me once.)

Let me know if I can link your series to my resource page? I would love to…

By: jess wilson

jess wilson — Mon, 22 Jun 2009 17:23:08 +0000

this is great information, and hits close to home.

a friend of mine was harshly admonished once for ‘not keeping an eye on her son’. the kid was a flippin houdini, let me tell you. i watched him figure out how to get out of my house like nobody’s business. the officer’s words nearly destroyed her - dismissing her constant vigil as though it were nothing. sigh.

this is really helpful stuff.

By: Jeremy

Jeremy — Mon, 22 Jun 2009 17:03:24 +0000

Thanks for spreading awareness about what parents and caregivers can do to manage such a serious issue.