Teen Autism » Blog Archive » Connected

Connected

It was like having your favorite storybook characters come to life. That’s the best way I can describe it.

This past weekend I attended a gathering of people, mostly autism bloggers, who had participated in helping to raise funds for a service dog for Riley, Michelle O’Neil‘s daughter. How powerful it was for me, someone who, less than a year ago, did not personally know anyone who had a child on the autism spectrum. To sit at a table with twelve other parents of ASD children, including bestselling author John Elder Robison, was an incredible experience. I could literally feel the strength and solidarity of purpose. We are connected, and not just the people at that table. We are all connected – fellow bloggers and autism advocates, readers of autism blogs, and all parents of ASD children, no matter where they live or if they have Internet access or not. We all have different journeys, but we share the same goal – to help our children.

And so I felt privileged to partake in a lovely meal with some remarkable people. Jess and Matt Wilson and their children, who opened their home to several of us who covered some ground to get there, including Mama Mara (who brought chocolate cow pies), Pixie Mama (who posted beautiful descriptions of everyone), Michelle O’Neil (who posted some photos!), Kyra of This Mom (who posted the play-by-play), and myself. I am also glad to have met Jeneil of Rhemashope, Jenn of Devin’s Journey (who posted my new favorite metaphor), Petra of Our Journey, and Kim Stagliano and her husband. John Elder Robison not only graced us with his presence, he gave each of us two of his stunning, artistic photographs, and I can’t wait to frame mine and hang them in my home.

But I came away from this weekend with even more than some spectacular JER photography and a chocolate cow pie.  I came away with a sense of completion, and belonging. When I started this blog almost a year ago, I felt so alone. I wanted so desperately to connect with other people in my shoes. I knew there had to be plenty of other parents of ASD kids out there (1 in 150, so they tell us!), but for ten years – ten years! – I didn’t know that I was already connected. Now I do. Not just with the ones I broke bread with this weekend – all of you. Those who read this blog, and those who don’t. Those who don’t even have access to computers. Whether we know each other or not, no matter where we live, we are part of this community.

I no longer feel alone. And I hope that in reading my words, all of you out there feel the same way.

This entry (Permalink) was posted on Tuesday, February 24th, 2009 at 1:06 am and is filed under Milestones. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response , or trackback from your own site.

14 Responses to “Connected”

  1. mama mara Says:

    Love you! Miss you! Come over for a slumber party any time!

  2. Fearless Females Says:

    I’m glad you had fun with your friends… sounds like a nice bunch of girls, and good friends.

    It was too bad we couldn’t connect–I live so close–perhaps next time…

  3. Michelle O'Neil Says:

    The power of the internet, huh? It is amazing. I don’t know how autism moms survived before it. I really don’t. It was so good to meet you!

  4. Rhemashope Says:

    Yes, I’m so thankful for the connections. Great to meet you!

  5. kyra Says:

    so wonderful to meet you! yes. the need to connect is powerful. and it was amazing to have that opportunity with you and all the other lovely women!

  6. Jenn Ethirveerasingam Says:

    and that is how I feel. Less alone and isolated. You need me, I’m an email or phone call away. I so want to do this again but for a bit longer!!

    xoxoxoxo

    Jenn

  7. Carrie Says:

    The World Wide Web, is that, in deed! Long live the web that connects!

  8. M Says:

    I’ve been waiting to read your perspective on the event. I was glad you had a chance to get out, go all that way, do some serious mingling. Sounds like you had a very good time. It’s just been interesting to read the accounts from various participants…the warmth and sense of connection everyone describes…very powerful stuff. Also, sounds like everyone enjoyed that Tanya lady…she was apparently a big hit. I can understand why.

    Anyway…hope you’re rested up, having a good start to the week.

  9. Jess Says:

    What’s a chocolate cow pie? It sounds amazing. Is there a recipe?

  10. Yvonne Says:

    Wow! I’m so glad you feel connected – I guess I was lucky to have met women my own age who also had sons with autism in the early years – we still have a bond that will always be tight. Don’t know what I would do without them!
    (www.pardnerlardner.wordpress.com)

  11. Tanya Savko Says:

    Hi Jess – Here’s a link to the cow pies:

    http://www.simplybovine.com/products/cowpies.php

    They’re yummy!

  12. Casdok Says:

    Sounds wonderful!

  13. Teen Autism » Blog Archive » One of Ours Says:

    [...] to try to shove a huge carry-on into the overhead compartments of a smaller plane. For that matter, my trip last weekend was a mere overnighter, and my stuff wouldn’t even fill one of the smaller [...]

  14. Teen Autism » Blog Archive » Look Me in the Eye: A Review Says:

    [...] that I hadn’t done a book review in a long time, and since last week I had the privilege of meeting and talking with John Elder Robison, I decided to write a review of Look Me in the [...]

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